I didn’t write anything this month. Sometimes, I just can’t get myself to put anything on paper, usually because not enough happened. I spend most of my days lazing around, something I’ve gotten a lot better at over the years. I don’t read much, either. I don’t look forward to holidays and days off, but they usually turn out alright in the end. It’s been nine years since I was diagnosed with and ten years since I got ALS. Sometimes, I think to myself “that’s probably enough”, though I know I’m not supposed to. All it takes is one good idea, like Monieke’s fundraiser, and the thought is banished from my mind again. Planning is my favourite pastime. I have to be careful not to be too controlling. Sadly, Monieke is taking some time off right now, so the project is on a hiatus for now.
My chair has finally been fixed. My carers spend weeks dragging me around in a wheelchair with one busted wheel. Initially, I would have to part with my chair for a week so it could be repaired, but after a lot of convincing, they sent a repairman to our house to fix it. It took about ten minutes. Huzzah. One of my carers got the dust out of my PC, which had started making a lot of noise. She used a vacuum cleaner and a fan.
I love my garden. During afternoons, I like to sit in my sunroom and check up on my plants, seeing which ones are in bloom that day. I like to be in control of my garden, although Hein tends to make changes without consulting me. It’s a struggle for me to give the reins to someone else every now and then.