{"id":1804,"date":"2004-03-31T14:35:15","date_gmt":"2004-03-31T12:35:15","guid":{"rendered":"https:\/\/levenmetals.nl\/dagboek-maart-2004\/"},"modified":"2025-09-24T13:58:51","modified_gmt":"2025-09-24T11:58:51","slug":"diary-march-2004","status":"publish","type":"post","link":"https:\/\/levenmetals.nl\/en\/diary-march-2004\/","title":{"rendered":"Diary March 2004"},"content":{"rendered":"<h2>Needed<\/h2>\n<p>I was restless last night. It sounds stupid, but I lost sleep over a party Sara and I are organising. People have taken issue with the location we picked (Avifauna), especially a bunch of men who left all of the planning to us. But that still doesn\u2019t explain why I was so upset. I couldn\u2019t sleep and even cried a bit. This morning, I wrote a ruthless letter to the aforementioned gentlemen, which made me feel a lot better. Maybe I was upset because I was unable to verbally defend my choices. Maybe it was because I had vested my happiness on this one dinner party. Maybe it was just me being a sore loser and being upset that I didn\u2019t receive unanimous support. I threw the towel in the ring. They\u2019ll figure it out. I felt so alone. <!--more--><\/p>\n<p>The day prior I had been elated, for the wrong reasons. Floor had an English presentation about America. Despite the fact that she had the entirety of spring break to prepare it, it still wasn\u2019t finished on Sunday evening. That was when I took action. The wrong thing to do when raising a child, but I loved it. Why? Being needed, having an impending deadline, I love it. We wrote a great, easily readable presentation with great pacing. Floor was thankful, although she did edit some parts of the text. Bye bye pacing. Whatever, it\u2019s her presentation after all.<br \/>\nI think these stories are similar. Apparently, I\u2019m so desperate to be \u201cneeded\u201d that I immediately take the reigns and forget about everyone but myself while working on anything. That\u2019s what happens when one has to be the source of their own motivation. Every day starts with the question of \u201cwhat to do?\u201d I\u2019m usually useless, so the feeling of being \u201cneeded\u201d is amazing, even if the other party doesn\u2019t always enjoy my input. It\u2019s in my nature. I\u2019m just a bit of a taskmaster. <\/p>\n<h2>Into town<\/h2>\n<p>I rarely visit our town centre. Last Saturday I did, with my sister-in-law Netty. I hyped it up in my mind, but our main shopping street, the Haarlemmerstraat, is nothing special. Just bunch of hasty people carrying heavy bags and stuffing their faces with food while they go. To think I used to be one of those people. Luckily we walked on and found a few alleyways with nicer shops, walking by churches and fragrant market stands. It\u2019s those moments that make Leiden alright in my book.<\/p>\n<h2>Head cold<\/h2>\n<p>For the first time in years, I\u2019ve caught a proper cold; runny nose, sneezing and lots of mucus. I split my lip by sneezing a few times. I can\u2019t stay in bed, but by the time I\u2019m downstairs, snot is oozing down my face with nobody to wipe it off. How I miss my arms and legs. My nights got better after putting a cut onion on my nightstand (useful tip from my physical therapist). I\u2019m tired of having blocked sinuses, but I think the worst has passed.<\/p>\n<h2>Homepage<\/h2>\n<p>My website has been steadily growing in the background. The accessibility of my diary has seen the greatest improvement. Now it actually allows perusal. I\u2019ve been editing things too, the chapter on alternative medicine, for instance, is a lot more realistic now. I\u2019m excited to see what\u2019s going to happen to my site\u2019s new guestbook. Please, by all means, leave a comment. The person responsible for my new website is Adrie den Hertog, my sister-in-law. She has a company that has been building and maintaining websites for over a year now: Zin In Webdesign <a href=\"https:\/\/zininwebdesign.nl.\" target=\"_blank\" rel=\"noopener\">www.zininwebdesign.nl.<\/a> Adrie, I couldn\u2019t have asked for a better birthday present. <\/p>\n<h2>Sara<\/h2>\n<p>Even during Sara\u2019s party, my head cold turned heads. We all worked together because, of course, I couldn\u2019t keep myself from helping with the organisation; I love organising too much. Everything went well, except for the weather. Well, it was a success and the day after I received loads of heartwarming emails, which made me forget all about my prior feelings. <\/p>\n<h2>Storm<\/h2>\n<p>On Saturday, I went on a walk with Netty through a storm. The wind made beautiful ripples in the trees. While it was storming, there wasn\u2019t any rain. I loved feeling the wind on my face after being inside for a week and a half. It felt invigorating. I would have never gone outside of my own volition, but thanks to mine and Netty\u2019s arrangement, I\u2019ve seen some things I wouldn\u2019t have without her. <\/p>\n<h2>Sunroom<\/h2>\n<p>Last week, the architect gave us a shocking budget. For a simple sunroom, we would be set back 16,000 euros, which wouldn\u2019t even cover the building itself. We went to town hall, and the people there were very sympathetic to our plight. Our municipality will find us an architect and will subsidise a part of the building costs. I hope it\u2019ll be quick, but it probably won\u2019t be. As expected, after a strong start, I haven\u2019t heard anything from them in a while. All we can do now is wait. It\u2019ll probably be a while. <\/p>\n<h2>Photo sessions<\/h2>\n<p>My new website needs new photos. Hans took some on Saturday. My reactions to the camera\u2019s flashes were odd. Exaggerated reflexes are part of having ALS. A lot of the pictures takes went straight into the bin. The following three are the ones that made it in. Another one became the website\u2019s header. Did I pick the right ones? <\/p>\n<figure id=\"attachment_275\" aria-describedby=\"caption-attachment-275\" style=\"width: 300px\" class=\"wp-caption alignleft\"><img loading=\"lazy\" decoding=\"async\" class=\"wp-image-275 size-full\" src=\"https:\/\/levenmetals.nl\/ziw\/wp-content\/uploads\/2004\/03\/Pict0008.jpg\" alt=\"\" width=\"300\" height=\"225\" \/><figcaption id=\"caption-attachment-275\" class=\"wp-caption-text\">8<\/figcaption><\/figure>\n<figure id=\"attachment_276\" aria-describedby=\"caption-attachment-276\" style=\"width: 300px\" class=\"wp-caption alignleft\"><img loading=\"lazy\" decoding=\"async\" class=\"wp-image-276 size-full\" src=\"https:\/\/levenmetals.nl\/ziw\/wp-content\/uploads\/2004\/03\/Pict0010.jpg\" alt=\"\" width=\"300\" height=\"225\" \/><figcaption id=\"caption-attachment-276\" class=\"wp-caption-text\">10<\/figcaption><\/figure>\n<figure id=\"attachment_277\" aria-describedby=\"caption-attachment-277\" style=\"width: 300px\" class=\"wp-caption alignleft\"><img loading=\"lazy\" decoding=\"async\" class=\"wp-image-277 size-full\" src=\"https:\/\/levenmetals.nl\/ziw\/wp-content\/uploads\/2004\/03\/Pict0013.jpg\" alt=\"\" width=\"300\" height=\"225\" \/><figcaption id=\"caption-attachment-277\" class=\"wp-caption-text\">12<\/figcaption><\/figure>\n<h2>Boring<\/h2>\n<p>Our daughter has a flourishing social life. Before, she only had plans on either Friday or Saturday evening, but these days she\u2019s often busy on both. That\u2019s the way it goes. And our son is busy playing games with his clan, on the same nights. I have to say, I don\u2019t like it. Last year, we watched Idols together, but by now we couldn\u2019t care less about it. Pass\u00e9. And I can\u2019t say I care much for it anymore either. It\u2019s unbelievable how quickly fads come and go. Hein doesn\u2019t watch much TV either. In short, weekend nights have become a lot more boring.<\/p>\n<h2>A birthday spent outside<\/h2>\n<p>March 31st. Today I turned 49. The weather was good enough for us to spend it sitting outside. I was pampered and spoiled the whole day. And yet, I\u2019m kind of glad it\u2019s over. Onward, to 50?<\/p>\n<h2>A bad birthday present<\/h2>\n<p>On my birthday, I got the news that Sandra is quitting, effective on May 1st. Bummer.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Needed I was restless last night. It sounds stupid, but I lost sleep over a party Sara and I are organising. People have taken issue with the location we picked (Avifauna), especially a bunch of men who left all of the planning to us. But that still doesn\u2019t explain why I was so upset. I &hellip; <\/p>\n<p class=\"link-more\"><a href=\"https:\/\/levenmetals.nl\/en\/diary-march-2004\/\" class=\"more-link\">Continue reading<span class=\"screen-reader-text\"> &#8220;Diary March 2004&#8221;<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[89,82],"tags":[],"class_list":["post-1804","post","type-post","status-publish","format-standard","hentry","category-2004-en","category-diary"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.3 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Diary March 2004 - Living with ALS<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/levenmetals.nl\/dagboek-maart-2004\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Diary March 2004 - Living with ALS\" \/>\n<meta property=\"og:description\" content=\"Needed I was restless last night. 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