{"id":1253,"date":"1999-01-01T00:00:58","date_gmt":"1998-12-31T23:00:58","guid":{"rendered":"http:\/\/levenmetals.nl\/ziw\/en-toch-blijf-je-in-essentie-dezelfde\/"},"modified":"2017-12-04T17:40:54","modified_gmt":"2017-12-04T16:40:54","slug":"in-essence-one-stays-the-same","status":"publish","type":"post","link":"https:\/\/levenmetals.nl\/en\/in-essence-one-stays-the-same\/","title":{"rendered":"In essence, one stays the same"},"content":{"rendered":"<p>It\u2019s odd. My mother-in-law told me all the way in the beginning that my capacity to enjoy things would not be affected. My first thought then was \u201cwhatever\u201d, but it\u2019s actually true, I still relish the good things in life. One would expect a drastic change in my attitude toward life, but so far only small things have changed. Granted, I did become a bit more weepy. I\u2019ve always cried easily, but nowadays there\u2019s really no stopping it. The symptom fits the diagnosis, though. I\u2019m emotional, but I still don\u2019t want to be \u201csweet\u201d.<!--more-->  <\/p>\n<p>January 1999<br \/>\nI\u2019m still a massive control freak. Christmas dinner, groceries, packing for holidays (Floor acts as my body, she\u2019s got more of a talent for precise packing than I do. I usually throw everything in a box and let Hein do the dirty work. Not with her. Everything is fitted and measured before it\u2019s packed.) and now I\u2019ve started planning a family trip to the Jura Mountains. I\u2019m still highly involved and not even close to developing a devil-may-care attitude. It\u2019s amazing how one can stay themselves, even during hardship. I\u2019m sleeping a lot less and want to more present, especially to Hein, Floor and Ward. I can\u2019t sleep my life away. Something I do indulge in is lying down in my bed to think about what and how I\u2019m doing; a sort of internal dialogue. It keeps me in balance. <\/p>\n<p>March 1999<br \/>\nThere\u2019s no person I can get more at odds with than my mother, about the smallest things. Just like when I was younger. I\u2019d get so angry and frustrated. Everything is unfair. My ability to enjoy life is greater. I still feel childlike wonder and fun every time I visit the pier in Scheveningen or shoot some fireworks on New Year\u2019s Eve or when we go outside to have a snowball fight. I\u2019ll be there, leaning on my rollator. I\u2019m there with them and I\u2019m having fun.<br \/>\nI\u2019m still bringing my A game to bridge night. I\u2019m in it to win it, not to sit by the sideline. <\/p>\n","protected":false},"excerpt":{"rendered":"<p>It\u2019s odd. My mother-in-law told me all the way in the beginning that my capacity to enjoy things would not be affected. My first thought then was \u201cwhatever\u201d, but it\u2019s actually true, I still relish the good things in life. One would expect a drastic change in my attitude toward life, but so far only &hellip; <\/p>\n<p class=\"link-more\"><a href=\"https:\/\/levenmetals.nl\/en\/in-essence-one-stays-the-same\/\" class=\"more-link\">Continue reading<span class=\"screen-reader-text\"> &#8220;In essence, one stays the same&#8221;<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[82,83],"tags":[],"class_list":["post-1253","post","type-post","status-publish","format-standard","hentry","category-diary","category-prelude"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.5 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>In essence, one stays the same - Living with ALS<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/levenmetals.nl\/en\/in-essence-one-stays-the-same\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"In essence, one stays the same - Living with ALS\" \/>\n<meta property=\"og:description\" content=\"It\u2019s odd. My mother-in-law told me all the way in the beginning that my capacity to enjoy things would not be affected. My first thought then was \u201cwhatever\u201d, but it\u2019s actually true, I still relish the good things in life. 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