{"id":1243,"date":"2007-12-29T16:00:33","date_gmt":"2007-12-29T15:00:33","guid":{"rendered":"http:\/\/levenmetals.nl\/ziw\/dagboek-december-2007-laatste\/"},"modified":"2025-09-26T13:54:08","modified_gmt":"2025-09-26T11:54:08","slug":"diary-december-2007-final","status":"publish","type":"post","link":"https:\/\/levenmetals.nl\/en\/diary-december-2007-final\/","title":{"rendered":"Diary December 2007 (Final)"},"content":{"rendered":"<h2>I want to sleep<\/h2>\n<p>From the end of November till the first week of December I couldn\u2019t fall asleep once I got downstairs and wanted to continue sleeping in my chair. This usually happened around 4AM, so I really could have used some more sleep. It made me feel hopeless. Every hour I\u2019d wake Hein up because I kept panicking. Or I\u2019d be behind the computer at 4. Our GP prescribed us a different sleeping agent, which I\u2019ve started taking at night. Because of it I\u2019ve started sleeping for six to seven hours a night. The tradeoff is that I keep wanting to go to bed earlier. I keep waking up at 1:30AM feeling short of breath, despite the fact that I\u2019m using an oxygen mask. I\u2019m using more oxygen at night than everbefore.<\/p>\n<h2>Catheter<\/h2>\n<p>Urinating was getting more tiresome by the day. I\u2019d often panic at the thought of it. Panic would hit the hardest whenever I\u2019d have to get back in my chair, with my arms still dangling in the stairlift. In those moments, I\u2019d be gasping for air. Within a week, I had made up my mind and got a catheter. All I have to do to urinate now is twisting a valve on a small bag on my leg. It still gives me the feeling of relief it did before, about 7 times a day. I strongly believe in \u201ccosts vs. benefits\u201d. Changes have to be made if the current situation is too costly. My helps always dreaded scaling the stairlift on their own. Now though, urination is just a matter of twisting a valve.<\/p>\n<p>*****************************<\/p>\n<p align=\"left\">On the evening of Saturday, December 29th, 2007, Jeanet passed away, surrounded by family.\u00a0<span style=\"font-size: 1rem;\">She had lived with ALS for more than 10 years.<\/span><\/p>\n<p align=\"left\"><a href=\"https:\/\/levenmetals.nl\/?lang=en\">Read More&gt;&gt;<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>I want to sleep From the end of November till the first week of December I couldn\u2019t fall asleep once I got downstairs and wanted to continue sleeping in my chair. This usually happened around 4AM, so I really could have used some more sleep. It made me feel hopeless. Every hour I\u2019d wake Hein &hellip; <\/p>\n<p class=\"link-more\"><a href=\"https:\/\/levenmetals.nl\/en\/diary-december-2007-final\/\" class=\"more-link\">Continue reading<span class=\"screen-reader-text\"> &#8220;Diary December 2007 (Final)&#8221;<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[92,82],"tags":[],"class_list":["post-1243","post","type-post","status-publish","format-standard","hentry","category-2007-en","category-diary"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.4 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Diary December 2007 (Final) - Living with ALS<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/levenmetals.nl\/dagboek-december-2007-laatste\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Diary December 2007 (Final) - Living with ALS\" \/>\n<meta property=\"og:description\" content=\"I want to sleep From the end of November till the first week of December I couldn\u2019t fall asleep once I got downstairs and wanted to continue sleeping in my chair. 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