It\u2019s a difficult part of my life. Apparently I\u2019m very particular about my needs. I don\u2019t want things to move this fast. I\u2019d like things to match my pace. A little bit less commentary on how much I\u2019m deteriorating, I can do that myself. The contract ALS patients are supposed to sign involving their treatment (about the usage of feeding tubes, artificial respiration, et cetera) was another nasty surprise for me. I still haven\u2019t signed it yet, and I don\u2019t know if I ever will. On a more positive note, my first talk with my neurologist was very enlightening. In any case, I\u2019m happy with my current GP and I\u2019m starting to get used to the Rehabilitation Centre after a bit of a rough start. I still try to discuss my feelings and gripes about my treatment with my doctors. <\/p>\n
I\u2019m a bit depressed. I\u2019m starting to lose hope. The antioxidants haven\u2019t helped thus far. The talks with my neurologist have proven to be disastrous: \u201cSpeech therapy, physical therapy, they\u2019re no use. Maybe a bit of emotional support, but other than that? ALS Digest? A bunch of hysterical Californian hacks.\u201d It\u2019s those small jabs at my emotional supports that make me feel undermined. I haven\u2019t done any speech therapy since. Go on without the things that give me hope? I can\u2019t. I wrote my neurologist a letter about it. <\/p>\n
Doctors aren\u2019t doing me any good. My legs are shaking heavily now. Too much empathy is another thing that I can\u2019t stand. I wish everyone could just act like themselves, like everything is back to normal. Then again, nothing is normal anymore, is it?<\/p>\n","protected":false},"excerpt":{"rendered":"
It\u2019s a difficult part of my life. Apparently I\u2019m very particular about my needs. I don\u2019t want things to move this fast. I\u2019d like things to match my pace. A little bit less commentary on how much I\u2019m deteriorating, I can do that myself. The contract ALS patients are supposed to sign involving their treatment … <\/p>\n