Welcome to Jeanet’s homepage. This website contains her legacy; her monthly diaries in which she documented her day-to-day life. In it, she found comfort, as others did by reading her stories.

Jeanet was a unique woman. Brave, fiercely independent and caring. During the ten years she battled ALS, she never lost control of her life. We are proud to have had her as a life partner and as a mother.

Jeanet’s journal is a source of courage and inspiration for many and we hope that it remains that way, even after her passing.

We wish everyone affected by ALS and their friends and family the courage and vitality that defined Jeanet until the end.

Hein, Floor and Ward

Living with ALS - Jeanet van der Vlist with her family